Araştırma Makalesi
KALP YETERSİZLİĞİ OLAN BİREY VE YAKINLARININ EVDE BAKIM HİZMETLERİ HAKKINDAKİ GÖRÜŞ VE BEKLENTİLERİNİN BELİRLENMESİ
Öz
Amaç: Bu çalışma kalp yetersizliği olan birey ve yakınlarının evde bakım hizmetleri hakkındaki görüş ve beklentilerinin belirlenmesi amacıyla yapılmıştır.
Yöntem: Tanımlayıcı olarak yapılan bu çalışmanın evrenini 15 Ocak-15 Haziran 2013 tarihleri arasında Gülhane Askeri Tıp Akademisi Kardiyoloji kliniğinde kalp yetersizliği ile takip edilen hastalar ve yakınları oluşturmaktadır. Ölçütlere uyan 50 hasta ve 50 hasta yakını örneklemi oluşturmuştur. Etik kurul izni ve bireylerden aydınlatılmış onam alındıktan sonra çalışma yapılmıştır. Kalp yetersizliği hastaları ve yakınlarının sosyo-demografik özellikleri, hastalık bilgileri, evde bakım hakkındaki görüş ve beklentilerini belirlemeye yönelik soruları içeren veri toplama formlarıyla veriler toplanmıştır.
Bulgular: Araştırma kapsamına alınan hastaların yaş ortalaması 65,94±12,21, hasta yakınlarının yaş ortalaması 47,62±14,49 bulunmuştur. Hastanın evde bakımıyla ilgilenen kişilerin %42’si eşleridir. Bakım verenlerin sadece %27’si sağlık personelinden bakım verme ile ilgili eğitim almıştır. Hastaların %78’i, hasta yakınlarının %86’si evde hemşirenin bakım vermesi gerektiğini, hastaların %36’sı, hasta yakınlarının %54’ü olanaklar dahilinde tedavilerini evde sürdürmek istediklerini belirtmişlerdir.
Sonuç: Kalp yetersizliği tanısı alan hastalar ve yakınları evde sağlık bakımının gerekliliğine inanmalarına karşın, hastaların çoğu ve ailelerin de yarıya yakınının hastane dışında bakım almayı istemedikleri görülmüştür.
Anahtar Kelimeler
Kaynakça
- Akdemir N, Bostanoğlu H, Yurtsever S, ve ark. Yatağa bağımlı hastaların evde yaşadıkları sağlık sorunlarına yönelik evde bakım hizmet gereksinimleri. Dicle Tıp Dergisi 2011;38(1): 57-65.
- Azzolin KO, Lemos DM, Lucena AF, Rabelo- Silva interventions improve knowledge of disease and management in patients with heart Am Enfermagem. 2015;23(1): 44-50. Rev Lat Blue L, McMurray J. How much responsibility should heart failure nurses take? Eur. J. Heart Failure. 2005;7(3):
- Burton LC, Leff B, Harper M, et al. Acceptability to patients of a home hospital. J Am Geriatr Soc. 1998;46(5): 605-9.
- Castro RA, Aliti GB, Linhares JC, Rabelo ER. Adherence of patients with heart failure to pharmacological treatment in a teaching hospital. 2010;31(2): 225-31. and non- Rev Gaucha Enferm.
- Cowie MR, Wood DA, Coats AJ et al. Survival of patients with a new diagnosis of heart failure: a population based study. Heart. 2000;83(5): 505-10.
- Demir M, Ünsar S. Kalp Yetmezliği Ve Evde Bakım, Fırat Sağlık Hizmetleri Dergisi. 2008;3(8): 119-130.
- Ekman I, Andersson G, Boman K, et al. Adherence and perception of medication in patients with chronic heart failure during a five years randomized trial. Patient Educ Couns.2006;61(3): 348-53.
- Fang J, Mensah GA, Croft JB, Keenan NL. Heart failure-related hospitalization in the U.S., 1979 to 2004. J Am Coll Cardiol. 2008;52(6): 428–34.
- Freedland KE, Rich MW, Skala JA. Prevalence of depressionin hospitalized patients with congestive heart failure. Psychosom Med. 2003;65(1): 119-128.
- Fried TR, Doorn C, O’Leary JR, Tinetti ME, Drickamer preferences for home vs hospital care in the treatment of acute illness. Arch Intern. Med. 2000;160(10): 1501-1506.
- Galdeano LE, Rossi LA, Dantas RAS. Deficient knowledge nursing diagnosis: Identifying the learning needs of patients with cardiac disease. Int J Nurs Terminol Classif. 2010;21(3): 100-7.
- Gathright EC, Fulcher MJ, Dolansky MA, et al. Cognitive function does not impact self-reported health-related quality of life in heart failure patients. J Cardiovasc Nurs.2015;0(0): 1-7.
- Greene SJ, Fonarow GC, Vaduganathan M, et hospitalization for heart failure. Nat Rev Cardiol. 2015;12(4): 220–9. phaseafter
- Gorodeski EZ, Chlad S, Vılensky S Home- based care for heart failure: Cleveland clinic’s “heart care at home” transitional care program. Cleve Clin J Med. 2013;80(1): 20-6.
- Heo S, Lennie TA, Okoli C, Moser DK. Quality of life in patients with heart failure: Ask the patients. Heart Lung. 2009;38(2): 100–108.
- Karadağ M. Türk silahlı kuvvetlerinde görevli hekim öğretim üyelerinin evde bakım hizmetleri Ankara Üniversitesi Sağlık Bilimleri Enstitüsü Sağlık Eğitimi Anabilim Dalı Yüksek Lisans Tezi, 2006, Ankara.
- Kepez A, Kabakcı G. Kalp yetersizliği tedavisi, 2004;35(2): 69-81. Tıp Dergisi
- Kuhn D, Brown C. Exploration of factors associated with hospital readmissions in patients with chronic heart failure: A Pilot Study. Prof Case Manag. 2015;20(2): 106-109.
- Leff B, Burton L, Mader SL, et al. Hospital at home: feasibility and outcomesof a program to provide hospital-level care at home for acutely ill older patients. Ann Intern Med. 2005;143(11): 798–808.
- Lloyd-Jones D, Adams RJ, Brown TM et al. Heart disease and stroke statistics—2010 update: a report from the American Heart Association. Circulation. 2010;121(7): 948–54.
- McMurray JJ, Adamopoulos A, Anker SD ve ark. Akut ve kronik kalp yetersizliği tanı ve tedavisine yönelik 2012 ESC kılavuzu. Türk Kardiyol Dern Arş. 2012; 3(2): 26- 127.
- Mingming Y, Chair SY, Chan CW et al. Perceived learning needs of patients with heart failure in China:A cross-sectional questionnaire survey. Contemp Nurse. 2012; 41(1): 70–77.
- Nair N, Farmer C, Gongora E. Commonality between depression and heart failure. Am J Cardiol. 2012;109(5): 768-772.
- Özer S. Kalp yetersizliğinde aile/bakım verici yükü. Kardiyovasküler Hemşirelik Dergisi 2010;1(1): 3-7.
- Patel H, Shafazand M, Ekman I et al. Home care as an option in worsening chronic heart failure-a pilot study to evaluate feasibility, quality adjusted life years and cost-effectiveness. Eur J Heart Fail. 2008;10(7): 675-81.
- Pressler SJ, Subramanian U, Kareken D. Cognitive deficits and health-related quality of life in chronic heart failure. J Cardiovasc Nurs. 2010;25(3): 189-198.
- Riegel B, Carlson B, Kopp Z et al. Effect of a standardized nurse case-management telephone intervention on resource use in patients with chronic heart failure. Arch Intern Med. 2002; 162(6): 705-12.
- Rodriguez-Artalejo F, Guallar-Castillon P, Pascual CR et al. Health-related quality of life as a predictor of hospital readmission and death among patients with heart failure. Arch Intern Med. 2005;165(11): 1274–9.
- Roger VL, Go AS, Lloyd-Jones DM et al. Heart disease and stroke statistics−2011. Update a report from the American Heart Association. Circulation. 2011; 123(4):
- Seamark D, Blake S, Brearley SG, et al. Dying at home: a qualitative study of family carers' views of support provided by GPs community staff. Br J Gen Pract. 2014;64(629): 796-803.
- Stewart S, Carrington MJ, Marwick TH et al. Impact of home versus clinic-based management of chronic heart failure the WHICH? Intervention Is Most Cost-Effective & Consumer Friendly in Reducing Hospital Care) multicenter, randomized trial. J Am Coll Cardiol. 2012; 60(14): 1239-48.
- Stewart S, Jenkins A, Buchan S et al. The current cost of heart failure to the National Health Service in the UK. Eur J Heart Fail. 2002; 4(3): 361–371.
- Stewart S, MacIntyre K, Hole DJ et al. More ‘malignant’ survival following a first admission for heart failure. Eur J Heart Fail. 2001;3(3): 15–322. Five-year
- Stessman J, Ginsberg G, Hammerman- Rozenberg R, et al. Decreased hospital utilization by older adults attributable to a home hospitalization program. J Am Geriatr Soc. 1996;44(5): 591–8.
- Şensoy N, Karabekir HS. Evde bakım: Olgu serisi. Geriatri ve Geriatrik Nöropsikiyatri 2011;2(3): 21-27.
- Todero CM, LaFramboise LM, Zimmerman LM. Symptom status and quality of-Life outcomes management program for heart failure patients, Outcomes Manag. 2002; 6(4): 161-8. disease
- Turan ÖS. Evde izlemi yapılan kronik kardiyopulmoner hastaların evde bakım sürecinde tıbbi gereksinim düzeylerinin saptanması. Ankara. Tezi. 2008,
- Türkiye Kalp ve Damar Hastalıkları Önleme ve Kontrol Programı. Birincil, İkincil ve Üçüncül Korumaya Yönelik Stratejik Plan ve Eylem Planı (2010-2014), 2010, Ankara ISBN: 978-975-590-341-5 Sağlık Bakanlığı Yayın No: 812.
- Yılmaz M, Sametoğlu F, Akmeşe G, ve ark. Sağlık hizmetinin alternatif bir sunum şekli olarak evde hasta bakımı. İstanbul Tıp Dergisi 2009;11(3): 125-132.
Individuals With Heart Failure and Their Relatives’ Opinions and Expectations About Home Care Services
Öz
Purpose: This descriptive study aims to determine individuals with heart failure and their relatives’ opinions and expectations about home care services.
Method: The destructive study was done between January 15-June 15, 2013 in cardiology clinic and polyclinic of gulhane military medical academy with 50 patients diagnosed with heart failure and 50 relatives of patients. Study was done after having taken permission Ethic Committe and informed consent from individuals. Data was collected by data collection forms including questions which were desinged to determine sociodemographic characteristics, illness information, opinions and expectations of heart failure patients and their relatives about home care services.
Findings: Average age of patients who constituted the sample of the research is 65.94±12.21 and of patients’ relatives is 47.62±14.49. 42 % of people dealing with home caring of patients were their spouse. Only 27% of home caring people took education related with home caring service from health staff. 78% of patients and 86% of patients’relatives stated that nurse should care at home, 36% of patients and 54% of patients’relatives stated that they possibly wanted to continue treatment at home.
Result: Although patients with heart failure diagnosis and their relatives believed that health care at home was required, it was seen that most of the patients and nearly half of their families did not want to be taken care of outside the hospital.
Anahtar Kelimeler
Kaynakça
- Akdemir N, Bostanoğlu H, Yurtsever S, ve ark. Yatağa bağımlı hastaların evde yaşadıkları sağlık sorunlarına yönelik evde bakım hizmet gereksinimleri. Dicle Tıp Dergisi 2011;38(1): 57-65.
- Azzolin KO, Lemos DM, Lucena AF, Rabelo- Silva interventions improve knowledge of disease and management in patients with heart Am Enfermagem. 2015;23(1): 44-50. Rev Lat Blue L, McMurray J. How much responsibility should heart failure nurses take? Eur. J. Heart Failure. 2005;7(3):
- Burton LC, Leff B, Harper M, et al. Acceptability to patients of a home hospital. J Am Geriatr Soc. 1998;46(5): 605-9.
- Castro RA, Aliti GB, Linhares JC, Rabelo ER. Adherence of patients with heart failure to pharmacological treatment in a teaching hospital. 2010;31(2): 225-31. and non- Rev Gaucha Enferm.
- Cowie MR, Wood DA, Coats AJ et al. Survival of patients with a new diagnosis of heart failure: a population based study. Heart. 2000;83(5): 505-10.
- Demir M, Ünsar S. Kalp Yetmezliği Ve Evde Bakım, Fırat Sağlık Hizmetleri Dergisi. 2008;3(8): 119-130.
- Ekman I, Andersson G, Boman K, et al. Adherence and perception of medication in patients with chronic heart failure during a five years randomized trial. Patient Educ Couns.2006;61(3): 348-53.
- Fang J, Mensah GA, Croft JB, Keenan NL. Heart failure-related hospitalization in the U.S., 1979 to 2004. J Am Coll Cardiol. 2008;52(6): 428–34.
- Freedland KE, Rich MW, Skala JA. Prevalence of depressionin hospitalized patients with congestive heart failure. Psychosom Med. 2003;65(1): 119-128.
- Fried TR, Doorn C, O’Leary JR, Tinetti ME, Drickamer preferences for home vs hospital care in the treatment of acute illness. Arch Intern. Med. 2000;160(10): 1501-1506.
- Galdeano LE, Rossi LA, Dantas RAS. Deficient knowledge nursing diagnosis: Identifying the learning needs of patients with cardiac disease. Int J Nurs Terminol Classif. 2010;21(3): 100-7.
- Gathright EC, Fulcher MJ, Dolansky MA, et al. Cognitive function does not impact self-reported health-related quality of life in heart failure patients. J Cardiovasc Nurs.2015;0(0): 1-7.
- Greene SJ, Fonarow GC, Vaduganathan M, et hospitalization for heart failure. Nat Rev Cardiol. 2015;12(4): 220–9. phaseafter
- Gorodeski EZ, Chlad S, Vılensky S Home- based care for heart failure: Cleveland clinic’s “heart care at home” transitional care program. Cleve Clin J Med. 2013;80(1): 20-6.
- Heo S, Lennie TA, Okoli C, Moser DK. Quality of life in patients with heart failure: Ask the patients. Heart Lung. 2009;38(2): 100–108.
- Karadağ M. Türk silahlı kuvvetlerinde görevli hekim öğretim üyelerinin evde bakım hizmetleri Ankara Üniversitesi Sağlık Bilimleri Enstitüsü Sağlık Eğitimi Anabilim Dalı Yüksek Lisans Tezi, 2006, Ankara.
- Kepez A, Kabakcı G. Kalp yetersizliği tedavisi, 2004;35(2): 69-81. Tıp Dergisi
- Kuhn D, Brown C. Exploration of factors associated with hospital readmissions in patients with chronic heart failure: A Pilot Study. Prof Case Manag. 2015;20(2): 106-109.
- Leff B, Burton L, Mader SL, et al. Hospital at home: feasibility and outcomesof a program to provide hospital-level care at home for acutely ill older patients. Ann Intern Med. 2005;143(11): 798–808.
- Lloyd-Jones D, Adams RJ, Brown TM et al. Heart disease and stroke statistics—2010 update: a report from the American Heart Association. Circulation. 2010;121(7): 948–54.
- McMurray JJ, Adamopoulos A, Anker SD ve ark. Akut ve kronik kalp yetersizliği tanı ve tedavisine yönelik 2012 ESC kılavuzu. Türk Kardiyol Dern Arş. 2012; 3(2): 26- 127.
- Mingming Y, Chair SY, Chan CW et al. Perceived learning needs of patients with heart failure in China:A cross-sectional questionnaire survey. Contemp Nurse. 2012; 41(1): 70–77.
- Nair N, Farmer C, Gongora E. Commonality between depression and heart failure. Am J Cardiol. 2012;109(5): 768-772.
- Özer S. Kalp yetersizliğinde aile/bakım verici yükü. Kardiyovasküler Hemşirelik Dergisi 2010;1(1): 3-7.
- Patel H, Shafazand M, Ekman I et al. Home care as an option in worsening chronic heart failure-a pilot study to evaluate feasibility, quality adjusted life years and cost-effectiveness. Eur J Heart Fail. 2008;10(7): 675-81.
- Pressler SJ, Subramanian U, Kareken D. Cognitive deficits and health-related quality of life in chronic heart failure. J Cardiovasc Nurs. 2010;25(3): 189-198.
- Riegel B, Carlson B, Kopp Z et al. Effect of a standardized nurse case-management telephone intervention on resource use in patients with chronic heart failure. Arch Intern Med. 2002; 162(6): 705-12.
- Rodriguez-Artalejo F, Guallar-Castillon P, Pascual CR et al. Health-related quality of life as a predictor of hospital readmission and death among patients with heart failure. Arch Intern Med. 2005;165(11): 1274–9.
- Roger VL, Go AS, Lloyd-Jones DM et al. Heart disease and stroke statistics−2011. Update a report from the American Heart Association. Circulation. 2011; 123(4):
- Seamark D, Blake S, Brearley SG, et al. Dying at home: a qualitative study of family carers' views of support provided by GPs community staff. Br J Gen Pract. 2014;64(629): 796-803.
- Stewart S, Carrington MJ, Marwick TH et al. Impact of home versus clinic-based management of chronic heart failure the WHICH? Intervention Is Most Cost-Effective & Consumer Friendly in Reducing Hospital Care) multicenter, randomized trial. J Am Coll Cardiol. 2012; 60(14): 1239-48.
- Stewart S, Jenkins A, Buchan S et al. The current cost of heart failure to the National Health Service in the UK. Eur J Heart Fail. 2002; 4(3): 361–371.
- Stewart S, MacIntyre K, Hole DJ et al. More ‘malignant’ survival following a first admission for heart failure. Eur J Heart Fail. 2001;3(3): 15–322. Five-year
- Stessman J, Ginsberg G, Hammerman- Rozenberg R, et al. Decreased hospital utilization by older adults attributable to a home hospitalization program. J Am Geriatr Soc. 1996;44(5): 591–8.
- Şensoy N, Karabekir HS. Evde bakım: Olgu serisi. Geriatri ve Geriatrik Nöropsikiyatri 2011;2(3): 21-27.
- Todero CM, LaFramboise LM, Zimmerman LM. Symptom status and quality of-Life outcomes management program for heart failure patients, Outcomes Manag. 2002; 6(4): 161-8. disease
- Turan ÖS. Evde izlemi yapılan kronik kardiyopulmoner hastaların evde bakım sürecinde tıbbi gereksinim düzeylerinin saptanması. Ankara. Tezi. 2008,
- Türkiye Kalp ve Damar Hastalıkları Önleme ve Kontrol Programı. Birincil, İkincil ve Üçüncül Korumaya Yönelik Stratejik Plan ve Eylem Planı (2010-2014), 2010, Ankara ISBN: 978-975-590-341-5 Sağlık Bakanlığı Yayın No: 812.
- Yılmaz M, Sametoğlu F, Akmeşe G, ve ark. Sağlık hizmetinin alternatif bir sunum şekli olarak evde hasta bakımı. İstanbul Tıp Dergisi 2009;11(3): 125-132.
Toplam 39 adet kaynakça vardır.
Ayrıntılar
| Birincil Dil | Türkçe |
|---|---|
| Konular | Sağlık Kurumları Yönetimi |
| Bölüm | Editöryal |
| Yazarlar | |
| Yayımlanma Tarihi | 28 Haziran 2016 |
| Yayımlandığı Sayı | Yıl 2016Cilt: 5 Sayı: 1 |